Summer sunshines 2022!!

[Pigletina]

That’s excellent news Flash! I can’t imagine how relieved you are feeling

I’m just waiting to go in for my 20 week scan, bit nervous

[NannyBea]

My goodness everyone! I've just spent a good while catching up on all the posts. So much joy and a terrible tragedy I'm so sorry

I'm doing well, all things considered. Suffering a lot of aches and pains recently but nothing unmanageable. Also occasionally wetting myself.....do your kegels, ladies!

Pigletina how are you doing? I've got my 20 week scan on tuesday and although I wasn't bothered about it to start with, when I started reading that it was an "anomaly scan" I began worrying way too much that they would find an "anomaly". Hope yours goes ok!

[Lou89]

Hi ladies just got our call from screening and they have said that our Down’s syndrome has come up as high risk we are 150 which is right on the cusp. Going in for a NIPT test on Monday. I don’t know how to feel. We announced yesterday and I feel like we were premature.

Hoping all will be like Flash but I’m only 32 so it’s not my age that has flagged it so not too hopeful. I’m on my way to a hen weekend and all I want to do is go home and cry in bed.

Hope your 20 week scan went well Piglentina

[Pigletina]

Hi ladies just got our call from screening and they have said that our Down’s syndrome has come up as high risk we are 150 which is right on the cusp. Going in for a NIPT test on Monday. I don’t know how to feel. We announced yesterday and I feel like we were premature.

Hoping all will be like Flash but I’m only 32 so it’s not my age that has flagged it so not too hopeful. I’m on my way to a hen weekend and all I want to do is go home and cry in bed.

Hope your 20 week scan went well Piglentina

Oh Lou I am sorry to hear this - but in real terms, one in 150 chance is still so so unlikely! It is so much more likely that you will get the all clear on your NIPT in a week or two's time just like Flash. But the waiting is awful and I am sorry that you are having to go through it - it seems so unfair given how much ridiculous stuff you have had to go through to get to this stage already!

[Pigletina]

My goodness everyone! I've just spent a good while catching up on all the posts. So much joy and a terrible tragedy I'm so sorry

I'm doing well, all things considered. Suffering a lot of aches and pains recently but nothing unmanageable. Also occasionally wetting myself.....do your kegels, ladies!

Pigletina how are you doing? I've got my 20 week scan on tuesday and although I wasn't bothered about it to start with, when I started reading that it was an "anomaly scan" I began worrying way too much that they would find an "anomaly". Hope yours goes ok!

Hi NannyBea glad to hear you are ok! oh blimey I have been ignoring my pelvic floor, I will probably regret that at some point...
Yes I didn't really sleep last night because I made the mistake of googling what sort of 'anomalies' they are looking for. Luckily ours was fine, although it ended up being a training session for a student sonographer so it took aaaages (like 50 minutes of solid ultrasound). I'm a bit achey now and worrying it wasn't good for baby but sure its fine. They just work their way through the body checking brain, heart, stomach, diaphragm, kidneys, arms and legs, and the various arteries and veins in the heart and umbilical cord (I know a ridiculous amount of detail about this thanks to our educational session ). In my panicked googling last night, though, I did read that the most common anomalies they pick up are cysts in the brain and kidneys which sound horrifying but apparently are quite common and normally disappear before birth. So I am sure you will be fine. Good luck xx

[Cooperfour]

Oh ladies I am just the same re the 20 week scan. I was so focused on the 12 I didn’t really think about the 20, now it’s only 2 weeks away and I’m just realising what a big scan it is.

Lou - I’m so sorry to hear about your results, please try not to worry lovely, I’m sure the NIPT will come back quickly and reassure you. Sending lots of positive vibes your way x

[Leanne87]

Thank you everyone for your messages.

Unfortunately today didn’t go well for us and we were told there wasn’t a heartbeat and we’ve had a delayed/silent miscarriage.

We are still in shock, numb and upset… lots of different emotions. I need to think about how we want to proceed with removing the sac. Im heart broken and still coming terns with what’s happened. Despite the spotting there weren’t any cramps, and deep down although I was anxious I convinced myself everything was ok because I wanted it to be ok.

Going to take time to come to terms with what’s happened, and although we are lucky and blessed to have beautiful DD, I’m total devasted at this minute in time.

Thank you for all your support and hope all your journeys continue

I'm so so sorry to read this. Sending lots of love xxxx

[Leanne87]

This really is a rollercoaster. We get one bit of great news in the group, then heartache or worry. In so grateful to have you ladies on the journey with me.

Lou I really hope you get on ok, I totally understand the worry. We're 15+2 today and in still petrified.

Hope everyone has a lovely weekend xxx

[kg44]

Thank you for you everyone for the kind words. I will be ok once I've had everything cleaned and removed Monday morning, as its been three weeks and I'm since we had silent miscarriage from the size they measured and I'm still not bleeding for the pregnancy to come away. Through my previous ivf journeys we've been through lots of lows and i have learnt to pick myself up and continue, otherwise you'd give up and life has thought me if you want something you continue until you get it, or at least know you gave it your all and simply wasn't meant to be. For us we have one last frozen embryo so there is still hope, and this will get me through for now. I keep focusing on the fact we have a amazing DD, and there is some much positive we have in our life and not to forget this. I will take your advice and speak to the counselling service at the clinic, i do think speaking helps. I am struggling with sleep and have lots of tears but this time will past.

Flash - that's amazing news everything is ok. I'm so sorry you had to experience the worrying wait to get the result.

Lou - I am so sorry you have received this call. I can't begin to imagine what your feeling, after the journey you have been through to get this far. It is on the cusp, therefore there is real hope i pray the NIPT test show otherwise and wish you don't need to wait so long before you results come back. Sending all the hugs you need at such a worrying time for you both xx

If you ladies don't mind, I'd to to keep occasionally see how you are progressing and speak to you all.

[kg44]

Thank you for you everyone for the kind words. I will be ok once I've had everything cleaned and removed Monday morning, as its been three weeks since we had silent miscarriage from the size they measured and I'm still not bleeding for the pregnancy to come away. Through my previous ivf journeys we've been through lots of lows and i have learnt to pick myself up and continue, otherwise you'd give up and life has thought me if you want something you continue until you get it, or at least know you gave it your all and simply wasn't meant to be. For us we have one last frozen embryo so there is still hope, and this will get me through for now. I keep focusing on the fact we have a amazing DD, and there is some much positive we have in our life and not to forget this. I will take your advice and speak to the counselling service at the clinic, i do think speaking helps. I am struggling with sleep and have lots of tears but this time will past.

Flash - that's amazing news everything is ok. I'm so sorry you had to experience the worrying wait to get the result.

Lou - I am so sorry you have received this call. I can't begin to imagine what your feeling, after the journey you have been through to get this far. It is on the cusp, therefore there is real hope i pray the NIPT test will show otherwise like Flash, and wish you don't need to wait so long before you results come back. Sending all the hugs you need at such a worrying time for you both xx

If you ladies don't mind, I'd to to keep occasionally see how you are progressing and speak to you all.

[Leanne87]

Thank you for you everyone for the kind words. I will be ok once I've had everything cleaned and removed Monday morning, as its been three weeks and I'm since we had silent miscarriage from the size they measured and I'm still not bleeding for the pregnancy to come away. Through my previous ivf journeys we've been through lots of lows and i have learnt to pick myself up and continue, otherwise you'd give up and life has thought me if you want something you continue until you get it, or at least know you gave it your all and simply wasn't meant to be. For us we have one last frozen embryo so there is still hope, and this will get me through for now. I keep focusing on the fact we have a amazing DD, and there is some much positive we have in our life and not to forget this. I will take your advice and speak to the counselling service at the clinic, i do think speaking helps. I am struggling with sleep and have lots of tears but this time will past.

Flash - that's amazing news everything is ok. I'm so sorry you had to experience the worrying wait to get the result.

Lou - I am so sorry you have received this call. I can't begin to imagine what your feeling, after the journey you have been through to get this far. It is on the cusp, therefore there is real hope i pray the NIPT test show otherwise and wish you don't need to wait so long before you results come back. Sending all the hugs you need at such a worrying time for you both xx

If you ladies don't mind, I'd to to keep occasionally see how you are progressing and speak to you all.

Please do, would love to know what you have been up to and how you're getting on xx

[Flash19]

Hi ladies just got our call from screening and they have said that our Down’s syndrome has come up as high risk we are 150 which is right on the cusp. Going in for a NIPT test on Monday. I don’t know how to feel. We announced yesterday and I feel like we were premature.

Hoping all will be like Flash but I’m only 32 so it’s not my age that has flagged it so not too hopeful. I’m on my way to a hen weekend and all I want to do is go home and cry in bed.

Hope your 20 week scan went well Piglentina

Hi Lou,

I didn’t message back as you were on your hen weekend. I’m so so sorry to hear you’ve had this happen and I know so clearly first hand what it feels like and also in the waiting. I hope and pray the results come back quickly for us it was 6 days and that seems about average.

Try if you can (I know it’s hard) that just merely one more point you would have been classed as low risk so you almost were! Also I don’t know if when they called they gave you a percentage chance. This really helped me that the specialist midwife I saw did this before calling us. You have a 0.7% chance of a baby with DS and if I said that was how much chance you had of winning the lottery you wouldn’t be bothering to buy the ticket it would be so unlikely!! Also remember this is a test based on a computer algorithm so it’s very loose in its accuracy and nipt is so so much better as it tests the baby’s actual dna. Hang in there honey - keep busy ! Also don’t Google anything DS or other symptom related just deal
With what’s in front of you.

Sending so much love 🥰

[Lou89]

Thank you all for your kind thoughts and messages. I am truly grateful to be part of this group with each and every one of you I will admit I’ve been feeling quite sorry for myself. Feel like the odds just feel stacked against us all the time and as soon as we start to allow ourselves to feel happy something else goes wrong!

We had our NIPT done this morning and the screening coordinator was so unbelievably nice it made me feel a bit better about it all. Studies have recently shown that IVF, especially ICSI can reduce the levels of PAPP A hormone so that may be a factor as to why ours is showing so low. Trying to keep as positive as possible. I left the hen weekend early as I just needed to see hubby and cry on him for a bit before I I could start processing.

How did peoples 20 week scans go? How is everyone? So sorry I messaged on Friday- I was in shock and knew if anyone could understand the situation it would be you lovely lot. Hope I wasn’t too much of a downer! X

[Flash19]

Thank you all for your kind thoughts and messages. I am truly grateful to be part of this group with each and every one of you I will admit I’ve been feeling quite sorry for myself. Feel like the odds just feel stacked against us all the time and as soon as we start to allow ourselves to feel happy something else goes wrong!

We had our NIPT done this morning and the screening coordinator was so unbelievably nice it made me feel a bit better about it all. Studies have recently shown that IVF, especially ICSI can reduce the levels of PAPP A hormone so that may be a factor as to why ours is showing so low. Trying to keep as positive as possible. I left the hen weekend early as I just needed to see hubby and cry on him for a bit before I I could start processing.

How did peoples 20 week scans go? How is everyone? So sorry I messaged on Friday- I was in shock and knew if anyone could understand the situation it would be you lovely lot. Hope I wasn’t too much of a downer! X

Not at all - if you can’t be honest and open here what’s the point?! We are all in it together and that is really interesting info to know too! Have they given you any idea of when it will come back although it’s only a guess - we had ours done Thursday and came back following Wednesday late afternoon xxx

[Lou89]

Thank you all for your kind thoughts and messages. I am truly grateful to be part of this group with each and every one of you I will admit I’ve been feeling quite sorry for myself. Feel like the odds just feel stacked against us all the time and as soon as we start to allow ourselves to feel happy something else goes wrong!

We had our NIPT done this morning and the screening coordinator was so unbelievably nice it made me feel a bit better about it all. Studies have recently shown that IVF, especially ICSI can reduce the levels of PAPP A hormone so that may be a factor as to why ours is showing so low. Trying to keep as positive as possible. I left the hen weekend early as I just needed to see hubby and cry on him for a bit before I I could start processing.

How did peoples 20 week scans go? How is everyone? So sorry I messaged on Friday- I was in shock and knew if anyone could understand the situation it would be you lovely lot. Hope I wasn’t too much of a downer! X

Not at all - if you can’t be honest and open here what’s the point?! We are all in it together and that is really interesting info to know too! Have they given you any idea of when it will come back although it’s only a guess - we had ours done Thursday and came back following Wednesday late afternoon xxx

Hi Flash, thank you so much. She said she has had the results back as soon as Friday when the blood draw was done on a Monday but she couldn’t guarantee it. I’m really hoping we hear by Friday. How are you? I’m feeling guilty because we had discussed what we would do if the outcome was not what we would hope for. Like I’m betraying our baby inside me even considering or uttering the word termination, something I never thought I’d say. It’s a very difficult situation to find yourself in and until you are in it you have no idea how you would react. The coordinator did say she didn’t feel as though that is something we need to consider as based on our numbers she doesn’t think they follow the typical DS pattern. I’ll be able to breathe again once the results come in and we have the information to decide fully what our next steps would be. It’s been so emotionally draining xx

[Flash19]

Thank you all for your kind thoughts and messages. I am truly grateful to be part of this group with each and every one of you I will admit I’ve been feeling quite sorry for myself. Feel like the odds just feel stacked against us all the time and as soon as we start to allow ourselves to feel happy something else goes wrong!

We had our NIPT done this morning and the screening coordinator was so unbelievably nice it made me feel a bit better about it all. Studies have recently shown that IVF, especially ICSI can reduce the levels of PAPP A hormone so that may be a factor as to why ours is showing so low. Trying to keep as positive as possible. I left the hen weekend early as I just needed to see hubby and cry on him for a bit before I I could start processing.

How did peoples 20 week scans go? How is everyone? So sorry I messaged on Friday- I was in shock and knew if anyone could understand the situation it would be you lovely lot. Hope I wasn’t too much of a downer! X

Not at all - if you can’t be honest and open here what’s the point?! We are all in it together and that is really interesting info to know too! Have they given you any idea of when it will come back although it’s only a guess - we had ours done Thursday and came back following Wednesday late afternoon xxx

Hi Flash, thank you so much. She said she has had the results back as soon as Friday when the blood draw was done on a Monday but she couldn’t guarantee it. I’m really hoping we hear by Friday. How are you? I’m feeling guilty because we had discussed what we would do if the outcome was not what we would hope for. Like I’m betraying our baby inside me even considering or uttering the word termination, something I never thought I’d say. It’s a very difficult situation to find yourself in and until you are in it you have no idea how you would react. The coordinator did say she didn’t feel as though that is something we need to consider as based on our numbers she doesn’t think they follow the typical DS pattern. I’ll be able to breathe again once the results come in and we have the information to decide fully what our next steps would be. It’s been so emotionally draining xx

Hoping and praying g it comes back by Friday for you Lou! It’s so so so hard waiting - I have worked with DS children and they can bring so much joy however I wouldn’t ask for any child to have it obs but that meant it was the patau that bothered me most having the baby die before or after birth I don’t know how I could handle that. I’d be worried what responsibilities DS meant for my son as an adult but for us termination due to DS wouldn’t be an option. However each person is different and it’s got to be a personal decision and you know what you as a couple can handle. If we had had a high patau result I would have opted for the amniocentesis quite possibly as I’d want 100% certainty before a decision. If you can maybe just wait and see what your result is then you you will spare yourself that sense of betrayal or guilt unecessarily and distraction I found to be best to get through it with a few tears to realise the anxiety! Sending lots of love and hugs xxx

[Flash19]

It’s great too that she was so reassuring to say that it doesn’t look like a usual DS pattern - ours said the same re out blood tests and measurements so could only blame it on age and our result came back negative and my risk was 1:30! So hold onto hope!

We’re okay thanks. I think the whole experience has peaked my anxiety though so now I just want to get past the 20 week anomaly scan and then I’ll breathe a little easier. But you spend your life worrying about them even after birth

[Lou89]

It’s great too that she was so reassuring to say that it doesn’t look like a usual DS pattern - ours said the same re out blood tests and measurements so could only blame it on age and our result came back negative and my risk was 1:30! So hold onto hope!

We’re okay thanks. I think the whole experience has peaked my anxiety though so now I just want to get past the 20 week anomaly scan and then I’ll breathe a little easier. But you spend your life worrying about them even after birth

100% we wouldn’t know for definite what we would do until we knew. It’s all so emotional. Here’s to holding onto hope that everything comes back ok. Thanks for being such a support to me. I know you know how this feels first hand and the experience was so recent for you. Glad we are a week apart! We have all tried so hard and gone through so much to be where we are today, it only seems fair we get our miracles at some point Xx

[Pigletina]

My goodness everyone! I've just spent a good while catching up on all the posts. So much joy and a terrible tragedy I'm so sorry

I'm doing well, all things considered. Suffering a lot of aches and pains recently but nothing unmanageable. Also occasionally wetting myself.....do your kegels, ladies!

Pigletina how are you doing? I've got my 20 week scan on tuesday and although I wasn't bothered about it to start with, when I started reading that it was an "anomaly scan" I began worrying way too much that they would find an "anomaly". Hope yours goes ok!

I hope your scan went ok today NannyBea!

[NannyBea]

My goodness everyone! I've just spent a good while catching up on all the posts. So much joy and a terrible tragedy I'm so sorry

I'm doing well, all things considered. Suffering a lot of aches and pains recently but nothing unmanageable. Also occasionally wetting myself.....do your kegels, ladies!

Pigletina how are you doing? I've got my 20 week scan on tuesday and although I wasn't bothered about it to start with, when I started reading that it was an "anomaly scan" I began worrying way too much that they would find an "anomaly". Hope yours goes ok!

I hope your scan went ok today NannyBea!

It did!!! Everything perfectly spot on! No anomalies and all measurements right on the 50th centile. I feel very blessed

[Lou89]

That’s wonderful news NannyBea! 🥰

[Pigletina]

Aw that’s great news NannyBea I can’t remember, did you find out the sex already or are you keeping it a surprise? X

[Flash19]

Congratulations NannyBea!!

[Flash19]

It’s great too that she was so reassuring to say that it doesn’t look like a usual DS pattern - ours said the same re out blood tests and measurements so could only blame it on age and our result came back negative and my risk was 1:30! So hold onto hope!

We’re okay thanks. I think the whole experience has peaked my anxiety though so now I just want to get past the 20 week anomaly scan and then I’ll breathe a little easier. But you spend your life worrying about them even after birth

100% we wouldn’t know for definite what we would do until we knew. It’s all so emotional. Here’s to holding onto hope that everything comes back ok. Thanks for being such a support to me. I know you know how this feels first hand and the experience was so recent for you. Glad we are a week apart! We have all tried so hard and gone through so much to be where we are today, it only seems fair we get our miracles at some point Xx

Oh I’ve been thinking of you so much because as you say I have lived out the week you’re having so recently myself x

[Flash19]

Lou how are you doing? Been thinking of you so much and hope you get the result your hoping for abs that you get it today x