November 2022

[KMor]

I’m ok thank you . Just waiting for my EMMA/ALICE results which are taking longer than anticipated - I was hoping to get them today but they said it might be next week now.

We also had our frozen embryos PGTA tested on Tuesday - they all survived the thaw, biopsy and refreeze so keeping everything crossed for a positive result in a few weeks then we can make a plan for the new year! I figured I just wasn’t prepared to do another transfer without having more assurances xx

[Applecart]

I’m ok thank you . Just waiting for my EMMA/ALICE results which are taking longer than anticipated - I was hoping to get them today but they said it might be next week now.

We also had our frozen embryos PGTA tested on Tuesday - they all survived the thaw, biopsy and refreeze so keeping everything crossed for a positive result in a few weeks then we can make a plan for the new year! I figured I just wasn’t prepared to do another transfer without having more assurances xx

Great news they all survived. Will have my fingers crossed for good news for you.

[Applecart]

So I shouldn’t be surprised but I am driving myself crazy already. I was surprisingly calm for a few days but have now convinced myself it’s all go wrong again. I’ve been feeling less tired the last few evenings so paranoid about that. I don’t want to do an early scan as did last time so I have ordered some hcg bets blood tests prob be a week yet though by the time they come, I send back and then get results xx

[KMor]

Oh Applecart, so sorry to hear you’re struggling I’m sure everything is absolutely fine but it’s totally normal to feel like that’s not the case, after a journey like this! When is your scan booked for?

I didn’t know you could order beta tests but I’m hoping that will give you the reassurance you need xx

[Applecart]

Oh Applecart, so sorry to hear you’re struggling I’m sure everything is absolutely fine but it’s totally normal to feel like that’s not the case, after a journey like this! When is your scan booked for?

I didn’t know you could order beta tests but I’m hoping that will give you the reassurance you need xx

Thanks I have felt a little better today. Had a quick wave of feeling sick this morning and have been tired during the day so maybe all the symptoms haven’t gone. I just feel different. It’s so hard to explain but also you are right I guess after all this it’s normal to not feel ok. My scan isn’t until the 6th. I’m going to see what happens with this blood test and over this week and then maybe see if they will push it forward a bit. I sort of want to wait longer because we lost just after the scan last time so I know I will worry about that if we scan early. Can’t win! Yea I just found the blood test kit online, looked at reviews and they were ok so hopefully it will work x

[StarGirl]

@applecart sorry to hear you’re in that space. I felt incredibly anxious this time too and was exactly the same about scans as in I want one but I don’t because you’re trying to get ahead of where you lost last time. Equally, there’s a risk of seeing nothing up until 7 weeks anyway.

I know you know this, but realistically there’s nothing you can do other than wait out these torturous 3 weeks to find out where you’re up to.

You’re going to be very up & down but try to keep busy (easier said than done) because you just need to make it to your scan. Symptoms as early as you are are going to come and go - which is SO triggering when we’ve experienced that loss of symptoms before during our mmc. But my advice is that you need to just see out the day, because they could be back in the following couple of days. It’s so stressful.

I still feel so anxious. I think you’re living out the unfortunate reality of pregnancy after loss and it’s hard to find the peace and enjoyment when you’ve felt that grief. Don’t be hard on yourself and should you need to share anxieties, please do! X

[StarGirl]

I’m ok thank you . Just waiting for my EMMA/ALICE results which are taking longer than anticipated - I was hoping to get them today but they said it might be next week now.

We also had our frozen embryos PGTA tested on Tuesday - they all survived the thaw, biopsy and refreeze so keeping everything crossed for a positive result in a few weeks then we can make a plan for the new year! I figured I just wasn’t prepared to do another transfer without having more assurances xx

Keep us updated Kmor!

Sounds like you’re going to have a plan of action in place by the new year! So positive.

@kim89! How are you getting on?

[Applecart]

Thanks I know you are right really. You start driving yourself mad though don’t you. Like I realised the aspirin I have been using was out of date I would hope that wouldn’t make a difference but I can’t help the little voice that says maybe that’s why things might have gone wrong x

[siba]

@applecart Thinking of you. I'm sure the aspirin won't have made any difference. And I wouldn't worry about having no symptoms yet. You're still very early. I don't think I had any symptoms until about week 5 or 6. When you get symptoms you'll be wishing you didn't have them believe me! I would gladly give you some of my nausea! I'm 13 weeks and still have nausea. I'm so fed up with it, and fed up of lying on the sofa not having a life.

I have a scan this Friday. The scan is where it all went wrong for me last time so I'm feeling very nervous

[Applecart]

Oh Siba I can imagine how anxious you must feel leading up to scan! I know you are 13 weeks but is this your ‘12’ week nhs scan? Sorry you are feeling so sick still. I know I would hate it but would take some sickness right now. I thought I felt a bit sick yesterday morning but nothing today so prob just anxious sick feeling. I think it’s not the lack of symptoms that is bothering me, it’s how I felt totally exhausted every day and had sort of pulling stretching feelings low down and then both just vanished over night last Weds and I have felt pretty normal ever since. The sudden loss of symptoms isn’t usually a good sign. Well I did the blood test and got it in the post tonight so hoping to get results by Friday

[Applecart]

@applecart Thinking of you. I'm sure the aspirin won't have made any difference. And I wouldn't worry about having no symptoms yet. You're still very early. I don't think I had any symptoms until about week 5 or 6. When you get symptoms you'll be wishing you didn't have them believe me! I would gladly give you some of my nausea! I'm 13 weeks and still have nausea. I'm so fed up with it, and fed up of lying on the sofa not having a life.

I have a scan this Friday. The scan is where it all went wrong for me last time so I'm feeling very nervous

When you say week 5/6 do you mean after transfer or according to pregnancy dates coz I was technically 6 weeks on Sunday. Been nearly 4 weeks since my transfer.

[siba]

I get confused with all that but I started getting nausea about 5 days before my scan at Care. But my scan was a week later than they usually book because I was in Portugal. So I think that means I had the nausea in week 6? or would it be 5?

Yes I think it will be the equivalent of the 12wk scan. It doesn't say on the booking.

Really hoping yours is still OK. When's your scan? Are your pregnancy tests still coming back as positive?

@applecart Thinking of you. I'm sure the aspirin won't have made any difference. And I wouldn't worry about having no symptoms yet. You're still very early. I don't think I had any symptoms until about week 5 or 6. When you get symptoms you'll be wishing you didn't have them believe me! I would gladly give you some of my nausea! I'm 13 weeks and still have nausea. I'm so fed up with it, and fed up of lying on the sofa not having a life.

I have a scan this Friday. The scan is where it all went wrong for me last time so I'm feeling very nervous

When you say week 5/6 do you mean after transfer or according to pregnancy dates coz I was technically 6 weeks on Sunday. Been nearly 4 weeks since my transfer.

[Applecart]

My scan isn’t until 6th Dec. 2 weeks today. It’s like torture. I just have a feeling it isn’t good but my scan is 5 and a half weeks after my transfer x

[KMor]

Applecart - how are you doing? I have every faith that your scan will be ok but I know that won’t help the anxiety, which is natural.

Siba - good luck for the scan today. Let us know how you get on

I got all my results back this week - something came back on the EMMA test, which they think could have been caused by the miscarriages (not surprising given how long the 1st and 3rd one took!) so I’m on antibiotics and then 5 weeks of probiotics and then another dreaded biopsy to make sure all cleared.
We also got our PGTA back today - we have one Euploid, one they weren’t clear on (so have a follow up with a genetic counsellor to see if we’d like to use it or not) and one aneuploid (which we can’t use). I definitely feel some relief that we can make healthy euploid embryos as I’ve had some serious wobbles thinking it’s not possible for us. She also said it’s bang in line with their normal stats, which I’m taking as a win! (Don’t get many of those right now )
Also sort of relieved that something came back on the EMMA as it means there’s finally something ‘treatable’ , even though it will delay us another 6 weeks.

Kim - I hope everything is going well with your meds xx

[siba]

@applecart Do you have your blood test results?

@kmor How many embryos tested ok with the PGTA? Have you only lost one with the testing? And one that's a bit uncertain.

My scan today was good baby boy is fine in there and the midgut herniation has sorted itself out like they said it would. This is the furthest we've got so far!

[Applecart]

Hey, got the blood test results today. Not the worst news but not good either. HCG is 1250 so within the normal range but defo at the very low end of normal and I can’t see how it has been doubling all these weeks every 47 hours and still be that low. Won’t get next results until Monday. I had also booked in for hcg test at the clinic Monday and weds in case something went wrong with this one but guess I can cancel it - though maybe not incase the second test doesn’t work. Might do the Monday one and then cancel the weds if I don’t need it.

Great news about your scan Siba. KMor, We had the same same 6 week delay with the antibiotics and probiotics. Was annoying but did go quickly.

[StarGirl]

Hey, got the blood test results today. Not the worst news but not good either. HCG is 1250 so within the normal range but defo at the very low end of normal and I can’t see how it has been doubling all these weeks every 47 hours and still be that low. Won’t get next results until Monday. I had also booked in for hcg test at the clinic Monday and weds in case something went wrong with this one but guess I can cancel it - though maybe not incase the second test doesn’t work. Might do the Monday one and then cancel the weds if I don’t need it.

Great news about your scan Siba. KMor, We had the same same 6 week delay with the antibiotics and probiotics. Was annoying but did go quickly.

I don’t really know that I understand HCG levels so can’t even comment.

What’s the clinic said today? Did you go today?

[StarGirl]

@applecart Do you have your blood test results?

@kmor How many embryos tested ok with the PGTA? Have you only lost one with the testing? And one that's a bit uncertain.

My scan today was good baby boy is fine in there and the midgut herniation has sorted itself out like they said it would. This is the furthest we've got so far!

Great news Siba. How are you feeling? Hope the sickness has worn off for you.

[StarGirl]

Applecart - how are you doing? I have every faith that your scan will be ok but I know that won’t help the anxiety, which is natural.

Siba - good luck for the scan today. Let us know how you get on

I got all my results back this week - something came back on the EMMA test, which they think could have been caused by the miscarriages (not surprising given how long the 1st and 3rd one took!) so I’m on antibiotics and then 5 weeks of probiotics and then another dreaded biopsy to make sure all cleared.
We also got our PGTA back today - we have one Euploid, one they weren’t clear on (so have a follow up with a genetic counsellor to see if we’d like to use it or not) and one aneuploid (which we can’t use). I definitely feel some relief that we can make healthy euploid embryos as I’ve had some serious wobbles thinking it’s not possible for us. She also said it’s bang in line with their normal stats, which I’m taking as a win! (Don’t get many of those right now )
Also sort of relieved that something came back on the EMMA as it means there’s finally something ‘treatable’ , even though it will delay us another 6 weeks.

Kim - I hope everything is going well with your meds xx

I know what you mean about having something tangible to “fix” makes such a difference the mindset! Glad you’re moving through things and you’ll get a lovely wine at Christmas before you go again in the new year. Ivf knows how to make strong women of us all doesn’t it?

@kim89! How are you doing lovely?

[Applecart]

Hey, got the blood test results today. Not the worst news but not good either. HCG is 1250 so within the normal range but defo at the very low end of normal and I can’t see how it has been doubling all these weeks every 47 hours and still be that low. Won’t get next results until Monday. I had also booked in for hcg test at the clinic Monday and weds in case something went wrong with this one but guess I can cancel it - though maybe not incase the second test doesn’t work. Might do the Monday one and then cancel the weds if I don’t need it.

Great news about your scan Siba. KMor, We had the same same 6 week delay with the antibiotics and probiotics. Was annoying but did go quickly.

I don’t really know that I understand HCG levels so can’t even comment.

What’s the clinic said today? Did you go today?

Well it’s supposed to double every 48 hours and mine went up around 400 in just over 48 hours so not even close. Got my seconds results at 5.30 last night so was too late to ring the clinic (I didn’t go in the end on Monday as I had paid to do these over tests). I rang my early pregnancy unit and explained the situation. She said I would need referring as you can’t self refer so to get the clinic to refer this morning. She said I would probably be seen today but if not then tomorrow. Just hope someone at the clinic gets back to me asap x

[StarGirl]

@applecart I’m so sorry you’re experiencing this. It’s just very very unfair and cruel.

I hope you get in today so you’re not waiting around. I hope you’re taking it as easy as you can x

[Applecart]

Thanks. Had a scan at the week earlier. First they suspected eptopic as thought it was an empty sack but my consultant came for a second opinion and found a feral pole but no heart beat. The measure the were 5 weeks 5 days when I should be 7 weeks 3 days. My appt at the EPAU is at 10.20 tomorrow, they couldn’t fit me in today x

[siba]

Still feeling sick frustratingly. Had a few migraines too, my last one was Sunday and Monday and was 48 hrs of vomiting. I cant take my usual medication which gets rid of them in about 30 mins as it's aspirin based.
If they keep happening I'll have to see if the Dr can give me anything.

The nausea is just clinging on, ugh! My sense of smell is still through the roof too, my poor other half is having to brush his teeth constantly

@applecart Do you have your blood test results?

@kmor How many embryos tested ok with the PGTA? Have you only lost one with the testing? And one that's a bit uncertain.

My scan today was good baby boy is fine in there and the midgut herniation has sorted itself out like they said it would. This is the furthest we've got so far!

Great news Siba. How are you feeling? Hope the sickness has worn off for you.

[siba]

@applecart Very sorry you're going through that. Hope you find out what's going on soon xxx

[StarGirl]

Thanks. Had a scan at the week earlier. First they suspected eptopic as thought it was an empty sack but my consultant came for a second opinion and found a feral pole but no heart beat. The measure the were 5 weeks 5 days when I should be 7 weeks 3 days. My appt at the EPAU is at 10.20 tomorrow, they couldn’t fit me in today x

I’m sorry. Really not easy. Hope the process moving forward is as quick and painless as possible. X